Translating Research into Change

2 Titles

A comprehensive examination of the lived experiences of individuals with hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobile Spectrum Disorders (HSD) in Scotland. The findings presented are primarily drawn from the “hEDS-START” project, an initiative aimed at highlighting the challenges faced by individuals living with hEDS/HSD in the United Kingdom.

All Books

Translating Research into Change: Reporting the Lived Experience of hEDS and HSD in Scotland

Kathryn Berg, Dervil Dockrell (Author); Rose Matheson (Illustrator)
7 May 2024

Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobile Spectrum Disorders (HSD) in Scotland: A Scrapbook of Lived Experiences

Kathryn Berg, Dervil Dockrell (Author); Rose Matheson (Illustrator); Sally Ross, Scott Winchester, Joanna Sinclair, Stephanie Thomson, Shae Morgon, Rebecca King, Ruth Mutch, Emma Bennon, Alice Dickinson, Nathan Corr, Ian Willis, Amy Hood, Susan McGill, Fiona Brown, Francesca Scappaticcio, Judith Gilbert, Jennifer Jones, Lucy Millar, Carina McIntosh, Maria Goldie, Anne Sutherland, Michele Goldie (Event Participant)
7 May 2024